We have an appointment scheduled with the Neurologist. Small steps, but progress none the less. Hopefull we will have some answers on 4/13. I know it seems far away, but the typical waiting period is 2 1/2 months. We were fortunate to get an appointment so quickly.
In the mean time, Noah is continuing to do well. He is running, talking and eating as if nothing happened.
Thank you again for your continued prayers.
Monday
Friday
Noah Update
First of all, thank you to everyone who has kept Noah and our family lifted up in prayer. It means more than we can possibly express. For those of you who are not aware of the events that unfolded, here is a brief recap. Last Thursday, March 4, we went into Noah’s room to start our day. Noah was lying in bed awake, but not responding to our voices or touch. After some observation and trying unsuccessfully to get an adequate response we took him to our pediatrician for an evaluation. There it was determined that his blood sugar was low and they transported him via ambulance to Children’s Hospital Trauma Bay. They drew lots of blood for testing and at that time he received a CT scan. The CT showed no signs of tumors or lesions that would account for his odd behavior. His blood work came back inconclusive. The rest of the day, Noah stayed very lethargic and we were kept at Children’s for observation overnight. The next day, we took Noah in for an EEG. The EEG showed no signs of him having a seizure at that time, but they did notice an abnormality in the function of “background” waves that they wanted to explore further. They also noted he had a few enzymes that were not metabolizing properly. Since Noah was VERY active on Friday and they were still uncertain as to what had taken place, they allowed us to go home and scheduled an MRI. The MRI was performed on Wednesday.
As of today, Noah is back to his very active self, but we still do not have many answers. The more they find the more questions we are left to sort out as a family. At the present time we do know the MRI confirmed he has no tumors or lesions on his brain. We also know there are some abnormalities that affect the way his background brain waves are functioning. We are working closely to determine what this means for Noah. Our pediatricians are amazing and are exceedingly invested in making sure we get the answers we need and finding us a neurologist that will provide Noah with the very best care. We do need a repeat of the MRI in 6 months to reevaluate Noah’s condition.
At this time, there is nothing more we would love to do than to share any news that we have. Unfortunately, the information is not coming in as quickly as we would like. Determining a diagnosis, especially a neurological one, is a tedious process and we truly believe it would be a great disservice to Noah and our family to pass on speculative information. We strongly caution everyone to allow the doctors to sort this out and to not rely upon Wikipedia, Google and other resources to draw conclusions. We have faith that we are taking the most proactive approach and that the questions we have for the doctors have been carefully thought out and researched.
We are overwhelmed and humbled by the outpouring of support, love and prayers. We love you all.
Team Horn
As of today, Noah is back to his very active self, but we still do not have many answers. The more they find the more questions we are left to sort out as a family. At the present time we do know the MRI confirmed he has no tumors or lesions on his brain. We also know there are some abnormalities that affect the way his background brain waves are functioning. We are working closely to determine what this means for Noah. Our pediatricians are amazing and are exceedingly invested in making sure we get the answers we need and finding us a neurologist that will provide Noah with the very best care. We do need a repeat of the MRI in 6 months to reevaluate Noah’s condition.
At this time, there is nothing more we would love to do than to share any news that we have. Unfortunately, the information is not coming in as quickly as we would like. Determining a diagnosis, especially a neurological one, is a tedious process and we truly believe it would be a great disservice to Noah and our family to pass on speculative information. We strongly caution everyone to allow the doctors to sort this out and to not rely upon Wikipedia, Google and other resources to draw conclusions. We have faith that we are taking the most proactive approach and that the questions we have for the doctors have been carefully thought out and researched.
We are overwhelmed and humbled by the outpouring of support, love and prayers. We love you all.
Team Horn
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